Choices, Support & Resources

This page is designed to give you as a patient, family member or caregiver information for resources to help your loved ones with their journey with cancer, various forms of support and assistance to make educated and informed decisions about care. C.C.F.F. does not advocate or promote any medical or alternative treatments for individuals. Please consult your family and physcian(s) for medical advice.

 



ALTERNATIVE MEDICINE

  

The Alternative Medicine Home Page 


This page is a launching pad for sources of information on unconventional,unorthodox, unproven, or alternative, complementary, innovative, integrative therapies.

  

The Rosenthal Center for Complementary and Alternative Medicine -

Columbia University College of Physicians and Surgeons
The Center sponsors ongoing studies and research into CAM and has educational resources.

 

Quackwatch -

Quackwatch is a nonprofit corporation whose purpose is to combat health-related frauds, myths, fads, and fallacies.

 

National Council Against Health Fraud -

The NCAHF is a non-profit, tax-exempt voluntary health agency that focuses it's attention upon health fraud, mis-information and quackery as public health problems. The organization is comprised of health professionals, educators, researchers, attorneys and concerned citizens.

 

National Center for Alternative Complementary Medicine (NCCAM) -

 

The National Institutes of Health NCCAM conducts and supports basic, applied research and training and disseminates information on complementary and alternative medicine to practitioners and the public.     nccam.nih.gov 

 

Medical Herbalism - 

Medical Herbalism is a quarterly journal of clinical herbalism. They provide links to medical information and to any resource relevant to medicinal herbs or herbalism practiced in a clinical setting, regardless of the medical tradition or system.

 

The Annie Appleseed Project - 

The Annie Appleseed Project acts to spread news, views and information about access to alternative cancer therapies.

 

The American Botanical Council - 

Dedicated to educating the public on the use of herbs and phytomedicinals.

 

Alternative Health News Online - 

A site that serves as a clearinghouse for alternative, complementary and preventive health-news pages on the Internet. Created by journalists at Tufts University.

 

Office of Cancer Complementary Alternative Medicine - 

Information and other alternativ emedicine links can be found here.

 

Oregon Medical Press - 

Oregon Medical Press is dedicated to providing a fair and thorough evaluation of herbs and other natural compounds as complementary cancer treatments.

 

Renal Stone Treatment - 

Uriflow is natural kidney (renal) stone treatment without any pain. Uriflow is the first proven product that provides a natural cure for Kidney Stones. It helps in breaking up Kidney Stones without Kidney Stone pain. Uriflow is a safe alternative for Kidney Stone removal.

 

Mississippi Health Insurance - 

Mississippi health insurance plans is one to research for complete low cost medical coverage on prescriptions, dental, groups, and more.

 

Mesothelioma - 

Centerandasbestos.com provides information on asbestos exposure, and alternative mesothelioma treatment options. 

 

Natural Healthcare Supplements -

Discover the amazing benefits that natural health care supplements can have on your body. 

 

How to Detox - 

There are several sites for free information on how to detox your body naturally. You can learn everything you need to know about detox diets, juice fasting, colon health, liver detoxing, blood cleansing, and more from these sites. Be sure to check with your physcian(s) before starting any program.

 



COPING/SUPPORT INFORMATION



Courageous Care Family Foundation, Inc. -


Family support groups are available through monthly webinars, weekly chat rooms and prayer call center. Visit our website for information and updates.

www.ccff5.org





Cancer Care - 

Cancer Care is a national non-profit organization that provides assistance free of charge to people with cancer. It's website has information on support services, financial assistance, and cancer treatment.

 

Therapycounseling.com - 

You can receive a free counseling session.      therapycounseling.org

 


Hospice Web -

This site provides a concise introduction to hospice care–including answers to frequently asked questions about decision making, details of care, and financial considerations. It also has a large list of links to hospice-related web sites and national and international providers, coupled by a tool for searching the National Hospice and Palliative Care Organization’s hospice databases.  hospicefoundation.org

 

National Hospice and Pallative Care Organization (NHPCO) 

NHPCO is an association of programs that provide hospice and palliative care that champion the rights and issues of terminally ill patients and their families. Its web site includes detailed information on hospice care, a checklist of questions to ask when selecting a hospice program, and a search tool for finding a hospice. Some Spanish-language information is available.        nhpco.org

 

Oral Health, Cancer Care and You - 

This site has information from the National Institute of Dental and Craniofacial Research (NIDCR) on preventing and managing oral complications of cancer treatment. NIDCR is a component of the National Institutes of Health.              nidcr.org

 

OncoLink - 

This site has links to coping with cancer, shared experiences of cancer patients and survivors, along with grief/end of life issues. It also has information on side effects from treatments, nutrition and general cancer support issues.               oncolink.org

 

Cancer.gov -

Information about complications of cancer and its treatment, as well as information on treatment-related nutritional concerns, supportive care clinical trials, and end-of-life issues.        cancer.gov

 

American Cancer Society - 

Links about dealing with cancer in everyday life. cancer.org

 

CancerSymptoms.org -

This site, developed by the Oncology Nursing Society, provides tips and background information about fatigue, anorexia, pain, depression, neutropenia, and cognitive dysfunction caused by cancer and its treatment. Cancer patients and caregivers can submit personal questions about these symptoms and receive answers, by email, from oncology nursing experts.          cancersymptoms.org

 

United Ostomy Association,Inc. - 

The United Ostomy Association is a volunteer-based organization dedicated to providing education, information, support, and advocacy for people who have had or will have intestinal or urinary diversions. Its web site offers a broad array of applicable resources for patients and the public.

 

National Lymphodema Network (NLN) - 

NLN is a nonprofit organization that disseminates information on the prevention and management of primary and secondary lymphedema. Its web site includes an overview of lymphedema; prevention information; a Question Corner, containing sets of questions and answers on a variety of lymphedema-related topics; and a list of questions to ask when contacting a lymphedema treatment center.   nln.org

 

Cancer Support Community -

Cancer Support Community (CSC), is an international non-profit dedicated to providing support, education and hope to people affected by cancer. They have one of the largest employers of psychosocial oncology mental health professionals in the United States to offer a network of personalized services and education for people affected by cancer.       cancersupportcommunity.org

 

Fertile Hope - 

Fertile Hope is a LIVESTRONG initiative dedicated to providing reproductive information, support and hope to cancer patients and survivors whose medical treatments present the risk of infertility. Their website provides information about cancer treatment-related infertility and links to various resources. 855-220-7777

 

Imerman Angels -

Imerman Angels partners anyone seeking cancer support with someone as a “Mentor Angel”. A Mentor Angel is a cancer survivor or survivor’s caregiver who is the same age, gender and most importantly who has beaten the same type of cancer. They are a walking, talking, living proof, and an inspiration that cancer truly can be beaten! The matching service is absolutely free, and helps anyone touched by any type of cancer, at any cancer stage, at any age, living anywhere in the world.    imermanangels.org            877-274-5529

 

Stupid Cancer - 

Stupid Cancer (I’m Too Young For This Cancer Foundation), builds online and offline support communities nationwide through local events, social media, educational workshops and international annual conference and a live weekly talk radio program, The Stupid Cancer Show.  stupidcancer.com         877-735-4673

 

The Ulman Cancer Fund for Young Adults

The Ulman Cancer Fund (UCF) welcomes young adults (18-35) who are experiencing issues specific to their cancer diagnosis, treatment or survivorship. Young adults face complex issues of independence, personal finance, education or career interruption as well as emotional concerns such as dating fertility and hopelessness. UFC provides a variety of support services including patient navigation, educational resources, peer mentoring, clinical trial matchups and a treatment decision tool to help patients make educated informed decisions about their care.              ulmanfunding.org        888-393-3863



FINANCIAL ASSISTANCE INFORMATION



Breast Cancer - The Pink Fund - 

Our Mission is one of helping those affected by breast cancer. 

The mission of The Pink Fund is to provide short-term financial aid to breast cancer patients in active treatment.        thepinkfund.org

 

CancerandCareers.org - 

This web site is sponsored by Cosmetic Executive Women. It is a resource and community for working women with cancer. This resource offers information for patients, caregivers and employers regarding financial and legal assistance as well as protections under the law as an employee living with cancer. This site also assists caregivers in helping friends/co-workers in their battle with cancer. cancercareers.org

 

CancerCare Co-Payment Assistance Foundation - 

The CancerCare Co-Payment Assistance Foundation is a non-profit organization that was established in 2007 to address the needs of individuals who cannot afford their insurance co-payments. This organization also helps to cover medications for treating cancer and currently has funds to assist patients with breast cancer, colon or colorectal cancer, glioblastoma, head and neck cancer, non-small cell lung cancer pancreatic cancer, and renal cell cancer.         cancercopay.org        866-552-6729

 

Healthwell Foundation - 

The HealthWell Foundation is a charitable organization that reduces barriers to medical care for patients with cancer, asthma, arthritis and other chronic or life-threatening diseases. The Foundation helps to bridge the gap by providing financial assistance to eligible patients to cover certain out-of-pocket costs, including, prescription drug coinsurance, copayments, deductibles, health insurance premiums and other selected out-of-pocket health care costs.     Healthwellfoundation.org    800-675-8416

 

Hill-Burton Free Medical Care Program -

A program that provides free or reduced cost medical services through obligated facilities to those persons who are uninsured and under-insured and meet eligibility criteria.

 

National Association of Hospitality Houses, Inc -

The National Association of Hospital Hospitality Houses, Inc. is a membership organization of hospital hospitality house type programs.

 

 The Partnership for Prescription Assistance- 

The Partnership for Prescription Assistance (PPARx) program was created to make it easier for low-income uninsured patients to get free or nearly free prescription medicines through existing patient assistance programs. The organization offers a single point of access to more than 475 public and private programs, including nearly 200 offered by pharmaceutical companies. There is a qualification in order to receive assistance, so visit the website for details.  parx.org        888-477-2669

 

Patient Access Network Foundation - 

The Patient Access Network Foundation (PANF) is an independent, national non-profit organization dedicated to providing under-insured patients with co-payment assistance through 21 disease-specific funds that give them access to the treatments they need.   panfoundation.org    866-316-7263

 

Patient Advocate Foundation - 

Patient Advocate Foundation (PAF) is a national non-profit organization that serves as a liaison between the patient and the insurer, employer and/or creditors to resolve insurance, job retention or debt crisis matters relative to tjheir diagnosis through case managers, doctors and attorneys. PAF seeks to safeguard patients through effective mediation, assuring access to care, maintenance of employment and preservation of their financial stability.    patientadvocate.org      800-532-5274

 

Patient Services; Inc. - 

Patient Services, Inc. (PSI)is a non-profit, charitable organization that provides a "safety net" for patients with chronic illnesses who are struggling to keep up with expensive premiums and co-payments. PSI supports patients living with specific chronic illnesses by: locating health insurance in all 50 states, subsidizing the cost of health insurance premiums, providing pharmacy and treatment co-payment assistance, assisting with Medicare Part D Co-insurance, helping with advocacy for Social Security Disability and proving Compassionate Prescription Drugs in collaboration with Pharmaceutical Patient Assistance Programs through the PSI-PI Pharmacy (a non-profit pharmacy).

 

The Pre -Existing Condition Insurance Plan (PCIP) - 

PCIP, which is run by either states or the Federal government, provides a health coverage option for people who have been without coverage for at least 6 months and have a pre-existing condition or have been denied health coverage because of their health condition. PVIP covers major medical and prescription drug expenses, but enrollees are responsible for paying premiums, deductibles, co-payments, and co-insurance amounts. PCIP does not cost enrollees more just because of their medical condition.

 
Miscellaneous - 


Many times churches within communities, churches offer assistance to families facing cancer. Assistance can include anything from prayer; having a minister or other congregate that is assigned to the family meet with the patient or family to have someone outside the family to talk or pray with; if there is a hospitality committee, meals can be arranged for the patient’s family to lighten the load of preparing meals during or after cancer treatments.

In some cases there are members willing to come clean the homes of the terminally ill, or are willing to drive them to various appointments. Some churches also offer food banks or clothing that is available for families in the church or the community as part of their outreach into the community. Churches can be of tremendous values to families on the journeys with diagnosed illnesses.

There are also food banks throughout various cities to help struggling families meet the need of providing proper nutrition for their family or caregivers. It's best to check the internet for this type of information or call churches directly to locate the help needed.

 



TRAVEL ASSISTANCE INFORMATION


Air Care Alliance -

The Air Care Alliance is a nationwide league of humanitarian flying organizations dedicated to community service. This site links you to nationwide listings of organizations that provide transport for patients and sometimes family members needing to get to treatment.

 
Air Charity Network-

The Air Care Alliance is a nationwide league of humanitarian flying organizations whose volunteer pilot members are dedicated to community service. The organization’s website provides information about all the member groups, which cover various geographic areas.
 

Coporate Angel Network -

Corporate Angel Network, a not-for-profit organization, provides free plane transportation for cancer patients going to/from recognized cancer treatment centers by using empty seats aboard corporate aircraft operating on business flights.

 

Mercy Medical Airlift -

Mercy Medical Airlift strives to “ensure that no needy patient is denied access to distant, specialized medical evaluation, diagnosis or treatment for lack of a means of long-distance medical air transportation; further, to ensure the provision of urgent transportation in situations of compelling human need and homeland security emergencies.” The non-profit charitable organization partners with major airline companies to provide free tickets to meet the travel needs of patients in need. Mercy Medical Airlift also oversees a program of volunteer pilots who use their own private aircraft to fly ambulatory patients at no cost throughout the Mid- Atlantic region.

 

National Patient Air Transportation Hotline -

The hotline provides information on free transportation for ill patients, information for health care professionals and volunteer pilots.

 

National Patient Travel Helpline -

The National Patient Travel Helpline provides information about charitable, long-distance medical air transportation. To request travel assistance, fill out the online form on their site, (patienttravel.org) or call the patient number at 800-296-1217

 

Miscellaneous - 

There are major airlines that offer substantial discounts or even free travel for terminally diagnosed patients and families. It is best to check with each one to see what best fits the needs for you and of your family.  

 

RESOURCES



National Cancer Institute -

The National Cancer Institute is responsible for conducting and supporting research on cancer. There is extensive information on this Web site about the NCI and its programs. A valuable section of the site called “CancerNet” contains a wealth of information about cancer, treatment options, detection, prevention, genetics, supportive care, clinical trials, and a ‘kid’s page’.

 

Mesothelioma Treatment - 

Mesothelioma currently has no cure, however patients are commonly treated with chemotherapy, radiation, surgical procedures, and clinical trials to help prolong their life expectancy. Mesothelioma Guide offers patients information about these treatment options and gives them hope so they can beat this fatal cancer. Mesothelioma Resource Online has developed this site to provide answers and support for those people diagnosed with mesothelioma cancer. The sad truth is that the mesothelioma survival rate rate is not very long. Research is inconclusive, but evidence leads doctors to believe that on average, patients live between four and eleven months after diagnosis. mesotheliomahelp.org 

 

American Institute for Cancer Research - 

AICR is a national cancer organization specializing in the field of diet, nutrition and cancer. On this page you’ll find information on cancer and cancer prevention.

 

Cancer.com - 

An online directory of links to sites providing cancer education, decision-making resources, and risk assessment tools for patients, physicians, family members and caregivers.

 

Cancer Treatment Centers of America - 

Cancercenter.com has a list of hospitals and treatment centers across the United States to assist patients and families. Their website is packed full of insightful information regarding various types of cancer, treatments, education and nutritional information. There are statistics showing their success in treating cancers, see their staff and chat online with a cancer specialist.

There are programs to assist families with financial needs after accepted and approved insurance has been billed and paid their portion. Their staff is extremely knowledgeable and their motto is "the mother standard of care" for all patients. In other words, treat patients the way you would want your mother to be treated if she were sick. It is a site worth reviewing,  your time will be well spent in speaking with CTCA. 

 

Cancer Guide - 

Cancer Guide is dedicated to helping you find the answers to your questions about cancer, and especially to helping you find the questions you need to ask. The guide provides interesting information from the patient perspective. The information in Cancer Guide represents a significant amount of research on the part of Steve Dunn, who is not a medical or health professional, and who recommends that you share the information you get here with your physicians to check for accuracy and relevance to your situation.

 

CanSearch: A Guide to Cancer Resources - 

CanSearch is a long list of “cancer resources” on the Web that makes up in volume what it lacks in description. The numerous links are broken down into sections, but after that, the reader is left to his or her own to figure out what may be on the other end of the link itself (for example, “Hypermedia Clinical Practice Guidelines for Cancer Pain” is next to “Medical Matrix-Cancer Information”).

 

Cleaning for a Reason - 

Free Professional House Cleaning for Women with Breast Cancer. Fighting cancer is difficult enough, but living with it is even tougher and that’s where Cleaning For A Reason steps in. As a nonprofit serving the entire United States and Canada, we partner with maid services to offer professional house cleanings to help women undergoing treatment for cancer, any type of cancer. To date, we have provided more than 17,000 cleanings for women with cancer with a value of more than $4.5 million in donated cleanings, and partnered with over 1,100 maid services.           cleaningforareason.org

 

Cancer Legal Resource Center - 

The CLRC provides free information and resources on cancer-related legal issues to cancer survivors, caregivers, health care professionals, employers, and others coping with cancer.       disabilityrightslegalcenter.org

 

Medical Reference - 

Medical-Reference is an exclusive blog on Drugs, Medicines, Healthcare and Pharmaceutical issues.

 

Rheumatoid Arthritis - 

Free information on Arthritis.org covering detailed information on arthritis pain relief.

 

Healthpropular.com - 

Health directory of information web sites general health resource.

 

National Bone Marrow Transplant  - 

This nonprofit organization seeks to help patients and families of those considering bone marrow transplants. They offer financial aid and support services for patients and families.   bonemarrow.org

 

Mayo Clinic Cancer Center - 

Mayo Clinic Cancer Center is a leader in translating knowledge gained from any and all research on cancer into effective improvements in the care of patients with cancer and their families.

 


CANCER LINKS:


     There are many types of cancer. The information belows is a list and short explanation of some types of cancer. Further down this page is additional information for websites that may be of interest, so scroll down the page until you find something that may be of help to you. 

Bladder Cancer

     Bladder cancer is cancer that begins in the bladder. The bladder is a hollow organ in the pelvis that stores urine before it leaves the body.

     The bladder wall is made of several layers. Most bladder cancers begin in a layer called the urothelium, which lines the inside of the ureter, bladder, urethra and parts of the kidneys. Cancer may also develop in other types of cells in the bladder.


Brain Cancer

     Primary brain cancer develops from cells within the brain. Part of the central nervous system (CNS), the brain is the control center for vital functions of the body, including speech, movement, thoughts, feelings, memory, vision, hearing and more.

     Primary brain tumors are classified by the type of cell or tissue the tumor affects, and the location and grade of the tumor. Tumor cells may travel short distances within the brain, but generally won't travel outside of the brain itself.

     When cancer develops elsewhere in the body and spreads (metastasizes) to the brain, it’s called a secondary brain tumor, or metastatic brain cancer. Metastatic brain tumors are more common than primary brain tumors. Some cancers that commonly spread to the brain include lung, colon, kidney and breast cancers.


Breast Cancer

     Breast cancer is cancer that forms in cells of the breast. The breast consists of lobules (glands that make breast milk), ducts (small tubes that carry milk from the lobules to the nipple), fatty and connective tissue, blood vessels and lymph vessels.

     The milk-producing ducts and glands are the two most likely areas to develop cancerous cells. In rarer cases, breast cancer begins in fatty tissues, also known as stromal tissues. Breast cancer may also occur in surrounding lymph nodes, especially those of the underarm.


Cervical Cancer

     Cervical cancer begins in the cervix, which is the narrow organ at the bottom of the uterus that conncects to the vagina. During childbirth, the cervix dialites to allow passage of the baby.


Colorectal Cancer

     Colorectal cancer is cancer which develops in the tissues of the colon and/or rectum. The colon and the rectum are both found in the lower part of the gastrointestinal (digestive) system. They form a long, muscular tube called the large intestine (or large bowel). The colon absorbs food and water and stores waste. The rectum is responsible for passing waste from the body.

     If the cancer began in the colon, which is the first four to five feet of the large intestine, it may be referred to as colon cancer. If the cancer began in the rectum, which is the last several inches of the large intestine leading to the anus, it is called rectal cancer.

     Colorectal cancer starts in the inner lining of the colon and/or rectum, slowly growing through some or all of its layers. It typically starts as a growth of tissue called a polyp. A particular type of polyp, called an adenoma, can then develop into cancer.


Esophageal Cancer

    Esophageal cancer occurs when the tissue that lines the esophagus becomes malignant. The esophagus is the tube which conncects the throat to the stomach that allows food to pass through.


Kidney Cancer

     Kidney cancer offurs when a malignant tumor forms in the tissue of the kidney. The kidneys are a small pair of bean-shaped organs located on either side of the spine and protected by the lower ribcage. Their main function is to filter the blood and remove excess water, salt and waste from the body. Although the body has two kidneys, only part of one of the kidneys is necessary to function.


Leukemia

     Leukemia is a cancer that originates in blood-forming tissue. The disease is characterized by the uncontrolled growth of blood cells, and is usually white blood cells (leukocytes), in the bone marrow. White blood cells are a dundamental component of the body's immune response. The leulemia cells crowd out and replace normal blood and marrow cells.


Liver Cancer

     Liver cancer begins in the tissues of the liver, whichi is an organ that sits in the upper right protion of the abdomen, below the diaphragm and above the stomach. The liver has many functions. It helps store nutrients from the food we eat, aids with digestion and also clears toins from the body.


Lung Cancer

     The lungs are two large organs made up of spongy tissue, which are located above the diaphragm and under the ribcage. When you breathe in, your lungs absorb oxygen and deliver it to the bloodstream where it is pumped throughout your body. While you exhale, the lungs remove carbon dioxide, which is a waste gas from the bloodtream. Lung cancer interferes with this vital process and can make breathing much more difficult. 


Melanoma

     Melanoma is a form of cancer that begins in melanocytes, specialized cells in the skin that produce the brown pigment known as melanin. These are the cells that darken when exposed to the sun, a protective response to protect the deeper layers of the skin from the harmful effects of the sun.

     Melanoma is highly curable if caught early, but is much more likely than other forms of skin cancer to spread if left untreated.


Non-Hodgkin Lymphoma

     Non-Hodgkin lymphoma (also called non-Hodgkin’s lymphoma or NHL) is cancer that develops in the lymphatic system from cells called lymphocytes, which are a type of white blood cell that helps the body fight infections.

     NHL can develop in many parts of the body, including the lymph nodes, bone marrow, spleen, thymus and digestive tract.


Ovarian Cancer

     Ovarian cancer begins in the ovaries, which are two almond-shaped glands located on either side of a women's uterus. The ovaries produce female hormones. The two hormones, estrogen and progesterone as well as the release of the eggs occur each month during a women's monthly cycle during the reproductive years. These years are from her first menstrual cycle through menopause.


Pancreatic Cancer

     Pancreatic cancer is an aggressive form of cancer that develops in the tissues of the pancreas. Located in the abdomen behind the lower part of the stomach, the pancreas aids in digestion.

     It contains both exocrine glands (which produce enzymes that help the body digest food) and endocrine glands (which produce hormones, including insulin, that help control blood sugar levels in the body).


Prostate Cancer

     Prostate cancer is cancer that begins in tissues of the prostate gland. The prostate is located just below the bladder and in front of the rectum, the prostate is the male sex gland responsible for the production of semen. Fortunately, prostate cancer is one of the most treatable malignancies if it's caught early. 

     Routine screening has improved the diagnosis of prostate cancer in recent years and more men are being diagnosed with early-stage prostate cancer. Prostate cancer often grows slowly, making active surveillance a treatment option for men. In addition, new and innovative technology helps to minimize the side effects of prostate cancer treatment, including incontinence and erectile dysfunction.


Skin Cancer

     Skin cancer is a broad term that refers to any type of cancer that begins in the cells of the skin. These cancers usually develop in the top layer of skin, also known as the epidermis.

     The most common types of skin cancer are basal cell carcinoma, squamous cell carcinoma and melanoma. In addition, there are several types of skin cancers that occur much less frequently, including kaposi sarcoma, merkel cell carcinoma, cutaneous (skin) lymphoma, skin adnexal tumors and various types of sarcomas.


Thyroid Cancer

     Thyroid cancer is a form of cancer that develops from the tissues of the thyroid gland. The thyroid gland is located in the front of the throat, below the thyroid cartilage (also known as the Adam’s apple).

     The thyroid gland produces several important hormones, including the thyroid hormone, which is involved in controlling body temperature, weight, energy level and heart rate. The thyroid gland also produces calcitonin, which helps the body use calcium.


Uterine Cancer

     Uterine cancer begins in the uterus. The uterus is a pear-shaped organ in a woman's pelvis where a baby lives and grows during pregnancy.


Cancer Links 

     These are a few types of cancer. Below is a more extensive list. Please check with your specialist or physician for additional answers to your questions.      

    At the end of this list are names of websites with additional information that may be of help to you or to your family / caregiver.

     

A
Acute granulocytic leukemia (see Leukemia)
Acute lymphocytic leukemia (ALL) (see Leukemia)
Acute myelogenous leukemia (AML) (see Leukemia)
Adenocarcinoma (see Lung cancer)
Adenosarcoma (see Lung cancer)
Adrenal cancer
Adrenocortical carcinoma (see Adrenal cancer)
Anal cancer
Anaplastic astrocytoma (see Brain cancer)
Angiosarcoma (see Soft tissue sarcoma)
Appendix cancer
Astrocytoma (see Brain cancer)



B
Basal cell carcinoma (see Skin cancer)
B-Cell lymphoma (see Non-Hodgkin lymphoma (NHL))
Bile duct cancer
Bladder cancer
Bone cancer
Bowel cancer (see Colorectal cancer)
Brain cancer
Brain stem glioma (see Brain cancer)
Brain tumor (see Brain cancer)
Breast cancer



C
Carcinoid tumors
Cervical cancer
Chondrosarcoma (see Bone cancer)
Chronic lymphocytic leukemia (CLL) (see Leukemia)
Chronic myelogenous leukemia (CML) (see Leukemia)
Colon cancer (see Colorectal cancer)
Colorectal cancer
Craniopharyngioma (see Brain cancer)
Cutaneous lymphoma (see Skin cancer)
Cutaneous melanoma (see Melanoma)



D
Diffuse astrocytoma (see Brain cancer)
Ductal carcinoma in situ (DCIS) (see Breast cancer)



E
Endometrial cancer (see Uterine cancer)
Ependymoma (see Brain cancer)
Epithelioid sarcoma (see Soft tissue sarcoma)
Esophageal cancer
Ewing sarcoma (see Bone cancer)
Extrahepatic bile duct cancer (see Bile duct cancer)
Eye cancer



F
Fallopian tube cancer (see Ovarian cancer)
Fibrosarcoma (see Soft tissue sarcoma)



G
Gallbladder cancer
Gastric cancer (see Stomach cancer)
Gastrointestinal cancer
Gastrointestinal carcinoid cancer
Gastrointestinal stromal tumors (GIST)
General
Germ cell tumor (see Brain cancer)
Glioblastoma multiforme (GBM) (see Brain cancer)
Glioma (see Brain cancer)



H
Hairy cell leukemia (see Leukemia)
Head and neck cancer
Hemangioendothelioma
Hodgkin lymphoma
Hodgkin's disease (see Hodgkin lymphoma )
Hodgkin's lymphoma (see Hodgkin lymphoma )
Hypopharyngeal cancer (see Throat cancer)



I
Infiltrating ductal carcinoma (IDC) (see Breast cancer)
Infiltrating lobular carcinoma (ILC) (see Breast cancer)
Inflammatory breast cancer (IBC) (see Breast cancer)
Intestinal Cancer
Intrahepatic bile duct cancer (see Bile duct cancer)
Invasive / infiltrating breast cancer (see Breast cancer)
Islet cell cancer (see Pancreatic cancer)



J
Jaw cancer (see Oral cancer)



K
Kaposi sarcoma (see Soft tissue sarcoma)
Kidney cancer



L
Laryngeal cancer (see Throat cancer)
Leiomyosarcoma (see Soft tissue sarcoma)
Leptomeningeal metastases
Leukemia
Lip cancer (see Oral cancer)
Liposarcoma (see Soft tissue sarcoma)
Liver cancer
Lobular carcinoma in situ (see Breast cancer)
Low-grade astrocytoma (see Brain cancer)
Lung cancer
Lymph node cancer (see Non-Hodgkin lymphoma (NHL))
Lymphoma (see Non-Hodgkin lymphoma (NHL))



M
Male breast cancer (see Breast cancer)
Medullary carcinoma (see Breast cancer)
Medulloblastoma (see Brain cancer)
Melanoma
Meningioma (see Brain cancer)
Merkel cell carcinoma (see Skin cancer)
Mesenchymal chondrosarcoma (see Bone cancer)
Mesenchymous
Mesothelioma
Metastatic breast cancer (see Breast cancer)
Metastatic melanoma (see Melanoma)
Metastatic squamous neck cancer
Mixed gliomas (see Brain cancer)
Mouth cancer (see Oral cancer)
Mucinous carcinoma (see Breast cancer)
Mucosal melanoma (see Oral cancer)
Multiple myeloma



N
Nasal cavity cancer (see Throat cancer)
Nasopharyngeal cancer (see Throat cancer)
Neck cancer (see Head and neck cancer)
Neuroblastoma
Neuroendocrine tumors (see Intestinal Cancer)
Non-Hodgkin lymphoma (NHL)
Non-Hodgkin's lymphoma (see Non-Hodgkin lymphoma (NHL))
Non-small cell lung cancer (NSCLC) (see Lung cancer)



O
Oat cell cancer (see Lung cancer)
Ocular cancer
Ocular melanoma
Oligodendroglioma (see Brain cancer)
Oral cancer
Oral cavity cancer (see Oral cancer)
Oropharyngeal cancer (see Throat cancer)
Osteogenic sarcoma (see Bone cancer)
Osteosarcoma (see Bone cancer)
Ovarian cancer
Ovarian epithelial cancer (see Ovarian cancer)
Ovarian germ cell tumor (see Ovarian cancer)
Ovarian primary peritoneal carcinoma (see Ovarian cancer)
Ovarian sex cord stromal tumor (see Ovarian cancer)



P
Paget's disease (see Breast cancer)
Pancreatic cancer
Papillary carcinoma (see Breast cancer)
Paranasal sinus cancer
Parathyroid cancer (see Thyroid cancer)
Pelvic cancer
Penile cancer
Peripheral nerve cancer (see Brain cancer)
Peritoneal cancer (see Ovarian cancer)
Pharyngeal cancer (see Throat cancer)
Pheochromocytoma (see Adrenal cancer)
Pilocytic astrocytoma (see Brain cancer)
Pineal region tumor (see Brain cancer)
Pineoblastoma
Pituitary gland cancer (see Brain cancer)
Primary central nervous system (CNS) lymphoma
Prostate cancer



R
Rectal cancer (see Colorectal cancer)
Renal cell cancer (see Kidney cancer)
Renal pelvis cancer (see Kidney cancer)
Rhabdomyosarcoma (see Soft tissue sarcoma)



S
Salivary gland cancer (see Oral cancer)
Sarcoma (see Soft tissue sarcoma)
Sarcoma, bone (see Bone cancer)
Sarcoma, soft tissue
Sarcoma, uterine (see Uterine cancer)
Sinus cancer
Skin cancer
Small cell lung cancer (SCLC) (see Lung cancer)
Small intestine cancer
Soft tissue sarcoma
Spinal cancer
Spinal column cancer (see Spinal cancer)
Spinal cord cancer (see Spinal cancer)
Spinal tumor (see Spinal cancer)
Squamous cell carcinoma (see Skin cancer)
Stomach cancer
Synovial sarcoma (see Soft tissue sarcoma)



T
T-cell lymphoma (see Non-Hodgkin lymphoma (NHL))
Testicular cancer
Throat cancer
Thymoma / thymic carcinoma
Thyroid cancer
Tongue cancer (see Oral cancer)
Tonsil cancer
Transitional cell cancer (see Bladder cancer)
Transitional cell cancer (see Kidney cancer)
Transitional cell cancer (see Ovarian cancer)
Triple-negative breast cancer (see Breast cancer)
Tubal cancer
Tubular carcinoma (see Breast cancer)



U
Ureteral cancer (see Bladder cancer)
Ureteral cancer (see Kidney cancer)
Urethral cancer
Uterine adenocarcinoma (see Uterine cancer)
Uterine cancer
Uterine sarcoma (see Uterine cancer)



V

Vaginal cancer
Vulvar cancer

 


These are a few types of cancer websites that may be of interest to you....

 

American Cancer Society

       cancer.org     800-227-2345

 

American Institute for Cancer Research  

       aicr.org     800-843-8114

 

Cancer.Net 

       cancer.net/portal/site/patient     703-797-1914

 

National Cancer Institute

      cancer.gov     800-422-6237

 

Bladder Cancer Advocacy Network

       bcan.org     888-901-2226

 

American Brain Tumor Association

       abta.org     800-886-2282

 

National Brain Tumor Society

        braintumor.org     800-934-2873

 

Breastcancer.org 

        breastcancer.org    

 

FORCE

       facingourrisk.org     866-288-7475

 

Susan G. Komen for the Cure    

       komen.org     877-465-6636

 

Colon Care Alliance

       ccalliance.org     877-422-2030

 

Kidney Cancer Association

        kidneycancerassociatiomn.org     877-422-2030

 

The Bone Marrow Foundation 

        bonemarrow.org     800-516-1336

 

Leukemia and Lymphoma Society

         lls.org     800-955-4572

 

Lymphoma Research Foundation of America

         lymphoma.org     800-500-9976

 

American Lung Association

         lungusa.org     800-586-4872

 

The Lung Cancer Alliance

        alcase.org     800-298-2436

 

LUNGevity Foundation 

        lungevity.org     312-464-0716

 

National Ovarian Cancer Coalition

         ovarian.org     682-682-7426

 

Ovarian Cancer National Alliance 

         ovariancancer.org     866-399-6262

 

Esophageal Cancer Education Foundation

         fightec.org     732-385-7461

 

Oral Cancer Foundation

          oralcancerfoundation.org     949-646-8000

 

Support for People with Oral and Head and Neck Cancer

          spphnc.org     800-377-0928  

 

Hirshberg Foundation for Pancreatic Cancer Research

         pancreatic.org     310-473-5121  

 

Pancreatic Cancer Action Network

        pancan.org     877-272-6226

 

Prostate Cancer Foundation

         prostatecancerfoundation.org     800-757-2873

 

Us Too

        ustoo.org     800-808-7866

 

ZERO

        zerocancer.org     202-463-9455

 

The Sarcoma Alliance

        sarcomaalliance.com     415-381-7236

 

The Skin Cancer Foundation

         skincancer.org     800-754-6490

 

Gastric Cancer Foundation

         gastriccancer.org   

 

ThyCa: Thyroid Cancer Survivor's Association

        thyca.org     877-588-7904





Chronic & Terminal Illnesses Links

There are many types of chronic illnesses. The information belows is a list and short explanation of some types and forms. Some of these can be terminal. Please consult a licensed healthcare professional for a proper diagnosis.

Further down the page is additional information for websites that may be of interest, so scroll down the page until you find something that may be of interest and help to you. 

 

Chronic Illnesses - 

Chronic Illness is often described as: Permanently unable to perform 2 of the 6 Activities of Daily Living (ADLs) or severe cognitive impairment requiring substantial supervision during bathing, continence, dressing, eating, toileting, or transferring.

Chronic illness, such as chronic obstructive pulmonary disease (COPD, such as emphysema), congestive heart failure (CHF), asthma, and diabetes, are chronic diseases where patients see their doctors primarily for management of symptoms. Below is a list of a few of them:

 

Rheumatoid Arthritis - 

Free information on Arthritis.org covering detailed information on arthritis pain relief.

 

Healthpropular.com - 

Health directory of information web sites general health resource.

 

Parkinson's disease -

Parkinson's disease (PD) is a chronic and progressive movement disorder, meaning that symptoms continue and worsen over time. Nearly one million people in the US are living with Parkinson's disease. The cause is unknown, and although there is presently no cure, there are treatment options such as medication and surgery to manage its symptoms.

Parkinson’s involves the malfunction and death of vital nerve cells in the brain, called neurons. Parkinson's primarily affects neurons in the area of the brain called the substantia nigra. Some of these dying neurons produce dopamine, a chemical that sends messages to the part of the brain that controls movement and coordination. As PD progresses, the amount of dopamine produced in the brain decreases, leaving a person unable to control movement normally.

The specific group of symptoms that an individual experiences varies from person to person. Primary motor signs of Parkinson’s disease include the following.

tremor of the hands, arms, legs, jaw and face
bradykinesia or slowness of movement
rigidity or stiffness of the limbs and trunk
postural instability or impaired balance and coordination

pdf.org

 

Als -

Amyotrophic lateral sclerososis, (ALS) was first found in 1869 by French neurologist Jean-Martin Charcot, but it wasn’t until 1939 that Lou Gehrig brought national and international attention to the disease. Ending the career of one of the most beloved baseball players of all time, the disease is still most closely associated with his name. Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Motor neurons reach from the brain to the spinal cord and from the spinal cord to the muscles throughout the body. The progressive degeneration of the motor neurons in ALS eventually leads to their death. When the motor neurons die, the ability of the brain to initiate and control muscle movement is lost. With voluntary muscle action progressively affected, patients in the later stages of the disease may become totally paralyzed.

Most commonly, ALS strikes people between the ages of 40 and 70, and as many as 30,000 Americans have the disease at any given time. ALS has cut short the lives of other such notable and courageous individuals as Hall of Fame pitcher Jim "Catfish" Hunter, Senator Jacob Javits, actors Michael Zaslow and David Niven, creator of Sesame Street Jon Stone, television producer Scott Brazil, boxing champion Ezzard Charles, NBA Hall of Fame basketball player George Yardley, pro football player Glenn Montgomery, golfer Jeff Julian, golf caddie Bruce Edwards, British soccer player Jimmy Johnstone, musician Lead Belly (Huddie Ledbetter), photographer Eddie Adams, entertainer Dennis Day, jazz musician Charles Mingus, former vice president of the United States Henry A. Wallace and U.S. Army General Maxwell Taylor.          

alsa.org

 

Alzheimer's

Alzheimer's is a disease that attacks the brain. It is the most common form of dementia. Dementia is a general term for a decline in mental ability severe enough to interfere with daily life. Stages show how the disease unfolds, but progression will vary greatly from person to person.

If you or a loved one have concerns about memory loss or other symptoms of Alzheimer's or a related dementia, it is important to be evaluated by a physician.           alz.org    

 

MS -

Multiple sclerosis (MS) can cause a variety of symptoms. For many, symptoms can flare-up and then subside over the course of days, months, or even years. MS is not contagious and its causes are not yet fully understood. MS is most frequently diagnosed in young adults. MS is a disease of the central nervous system (CNS). With MS, the protective covering (known as "myelin") that protects the nerves becomes damaged. Damaged myelin (and eventually nerves) disrupts the smooth flow of nerve impulses, causing the symptoms of MS. Common symptoms include fatigue, numbness, visual disturbances, bladder problems, mobility issues, and more. Areas of inflammation and damage in the brain or spinal cord are known as "lesions" or "plaques".

 Many possible causes for MS have been studied; a combination of factors appears to be involved. Slow-acting viruses, such as Epstein-Barr, could be involved. Researchers theorize that under certain conditions, MS may develop in genetically-susceptible individuals. Nutritional factors, such as fat intake and omega-3 fatty acids, may play a role in increasing or reducing one's risk of MS. Insufficient vitamin D and/or sunlight may also play a role. The reduction in parasites from different countries appears to be related to an increase in MS; individuals with parasites are less-likely to be diagnosed with MS. Smoking increases the risk of MS. CCSVI is a complex condition involving changes in blood flow from the brain back to the heart; some theorize this could be involved.

With MS, the body's own system of defense, known as the immune system, malfunctions. MS is believed to be an autoimmune disease. Immune-system cells that are misdirected to attack myelin, must cross the blood-brain barrier to enter the central nervous system (CNS). Once in the CNS, immune-system cells cause inflammation and damage to the myelin (the protective covering to the nerves). Early in the disease, myelin may be repaired (remyelination). Later in the disease process, and with progressive forms of MS, remyelination does not occur as frequently.  

mymsaa.org

 

MD

Muscular dystrophy is a group of genetic diseases in which muscle fibers are unusually susceptible to damage. These damaged muscles become progressively weaker. Most people who have muscular dystrophy will eventually need to use a wheelchair. The muscular dystrophies (MD) are a group of more than 30 genetic diseases characterized by progressive weakness and degeneration of the skeletal muscles that control movement. Some forms of MD are seen in infancy or childhood, while others may not appear until middle age or later.      

mda.org

 

Fibromyalgia


Fibromyalgia is a disorder characterized by widespread musculoskeletal pain accompanied by fatigue, sleep, memory and mood issues. Researchers believe that fibromyalgia amplifies painful sensations by affecting the way your brain processes pain signals.

Symptoms sometimes begin after a physical trauma, surgery, infection or significant psychological stress. In other cases, symptoms gradually accumulate over time with no single triggering event.

Women are much more likely to develop fibromyalgia than are men. Many people who have fibromyalgia also have tension headaches, temporomandibular joint (TMJ) disorders, irritable bowel syndrome, anxiety and depression.

While there is no cure for fibromyalgia, a variety of medications can help control symptoms. Exercise, relaxation and stress-reduction measures also may help.     

Fibromyalgia syndrome affects the muscles and soft tissue. Symptoms include chronic muscle pain, fatigue, sleep problems, and painful tender points or trigger points, which can be relieved through medications, lifestyle changes and stress management.

 

Lupus

Lupus is a chronic inflammatory disease that occurs when your body's immune system attacks your own tissues and organs. Inflammation caused by lupus can affect many different body systems — including your joints, skin, kidneys, blood cells, brain, heart and lungs.

Lupus can be difficult to diagnose because its signs and symptoms often mimic those of other ailments. The most distinctive sign of lupus — a facial rash that resembles the wings of a butterfly unfolding across both cheeks — occurs in many but not all cases of lupus.

Some people are born with a tendency toward developing lupus, which may be triggered by infections, certain drugs or even sunlight. While there's no cure for lupus, treatments can help control symptoms.    

lupus.org

  

  

 


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